I remember a boy in my class in high school who had these dry black patches on his skin. I don't think he was made fun of-not by me for sure-but if we had been educated on what it was it would have made a huge difference. I didn't want to be by him. I could have researched it on my own but that's not the first thing a teenager thinks of.

What a terrible ailment for a little girl to deal with. I realize I don't know you personally but you seem to have turned out to be a lovely person despite the suffering you have endured.